Disability Resources
Explore the resources below by topic:
Disability Rights & Advocacy
National Disability Rights Network (NDRN)
Works with Protection and Advocacy Systems (P&As) and Client Assistance Programs (CAPs) nationwide to protect the civil and human rights of people with disabilities.
Website: https://www.ndrn.org/
Disability Rights Education & Defense Fund (DREDF)
Advances the civil and human rights of people with disabilities through legal advocacy, education, and public policy work, with a focus on disability rights and equal access.
Website: https://dredf.org/
Liberators for Justice
Supports the right of disabled people to exercise choice and control over their lives, with a focus on opposing guardianship and institutionalization.
Website: https://liberators4justice.org/
Transgender Law Center (TLC) Disability Project
Centers disabled, Deaf, chronically ill, and Mad community leadership while advancing disability justice within transgender and LGBTQ+ movements.
Website: https://transgenderlawcenter.org/programs/disability-project/
Disability & Intersectionality Summit
A disability-led initiative centering the intersecting forms of oppression that shape disabled people's lives and experiences. The website includes presentations and resources from previous summits.
Website: https://www.disabilityintersectionalitysummit.com/
Greater National Advocates
Connects people with independent patient advocates who can help navigate healthcare challenges, medical decisions, and complex care situations.
Website: https://gnanow.org/
Sins Invalid
A disability justice-based performance project celebrating disabled artists, particularly artists from communities marginalized by race, gender, sexuality, and disability.
Website: https://www.sinsinvalid.org/
Sick in Quarters (SiQ)
A network of disabled and chronically ill artists and activists sharing lived experience, community knowledge, and resources for navigating healthcare and disability-related systems.
Website: https://www.sickinquarters.com/
Disability Visibility Project
An online platform dedicated to disability media, culture, storytelling, and community history. Check the website for current projects and available resources.
Website: https://disabilityvisibilityproject.com/
Rooted in Rights
A disability-rights media project that challenges stereotypes and changes public narratives about disability, mental health, and chronic illness.
Website: https://rootedinrights.org/
Independent Living & Community Resources
Disability Information and Access Locator (DIAL)
Helps people with disabilities find local organizations and community-based services related to independent living, transportation, housing, and other support needs.
Website: https://dial.acl.gov/
Centers for Independent Living (CILs)
Community-based organizations that provide services such as peer support, independent living skills training, individual advocacy, and information and referrals to help people with disabilities live as independently as possible.
Website: https://ncil.org/about/find-your-cil/
Disability Health Resources
People's CDC
A grassroots public health initiative focused on community-centered public health information, health equity, and advocacy.
Website: https://peoplescdc.org/
The Ehlers-Danlos Society
Provides education, research updates, advocacy, and community resources for people affected by Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
Website: https://www.ehlers-danlos.com/
Standing Up to POTS
Provides education and support for people affected by postural orthostatic tachycardia syndrome (POTS) and supports research to improve quality of life.
Website: https://www.standinguptopots.org/
Dysautonomia Support Network
Offers education, resources, and community support for people affected by dysautonomia and related autonomic nervous system conditions.
Website: https://www.dysautonomiasupport.org/
U.S. Pain Foundation
Provides advocacy, education, and resources for people living with chronic pain, as well as their caregivers and healthcare providers.
Website: https://uspainfoundation.org/
CFS Unravelled
An information resource for people living with or learning about conditions such as ME/CFS, fibromyalgia, POTS, and multiple chemical sensitivity (MCS).
Website: https://cfsunravelled.com/
Neurological & Movement Disorders
FND Hope
An organization dedicated to improving the lives of people affected by Functional Neurological Disorder (FND) through education, advocacy, research, and peer support. Offers online community support and educational programming for people living with FND and their families.
Website: https://fndhope.org/
Epilepsy Foundation
Provides education, advocacy, support, and resources for people living with epilepsy and seizures, their families, and caregivers. Offers a helpline, educational materials, seizure first-aid training, and connections to local support services.
Website: https://www.epilepsy.com/
National Multiple Sclerosis Society
Provides support and resources for people living with multiple sclerosis (MS), their families, and care partners. Offers information about navigating life with MS, connecting with support services, finding community, and accessing resources for everyday challenges.
Website: https://www.nationalmssociety.org/resources/get-support
PMD Alliance (Parkinson & Movement Disorder Alliance)
Provides education, resources, and community connections for people living with Parkinson's disease and other movement disorders, as well as their care partners and families. Offers programs and opportunities to connect with others navigating the challenges of movement disorders.
Website: https://www.pmdalliance.org/
Long COVID & Post-Viral Conditions
Long COVID Justice
A disability justice-centered initiative connecting people affected by Long COVID and associated chronic conditions with advocacy opportunities, peer support, community resources, and educational materials. Its resource hub includes information about disability benefits, accessible community organizing, and navigating life with chronic illness.
Website: https://longcovidjustice.org/resources/
Patient-Led Research Collaborative for Long COVID
A patient-led research organization bringing together people with Long COVID to advance research, share lived experience, and inform public understanding of the condition.
Website: https://patientresearchcovid19.com/
#MEAction
A patient-led organization advocating for people with myalgic encephalomyelitis (ME/CFS) and Long COVID. Offers educational resources, advocacy opportunities, community connections, and information about post-exertional malaise and pacing.
Website: https://www.meaction.net/
Body Politic
A patient-led initiative that grew out of a Long COVID peer-support community. Its website provides resources for people living with Long COVID, including peer-support directories, information about pacing, disability benefits, and navigating life with chronic illness.
Website: https://www.wearebodypolitic.com/resources/
Solve M.E.
An organization focused on research, advocacy, and support for people living with ME/CFS and Long COVID. Provides educational resources, research updates, and information about the overlapping challenges associated with post-infectious illnesses.
Website: https://solvecfs.org/
Endometriosis
Endometriosis Association
Provides education, information, and support for people affected by endometriosis, while supporting research and raising awareness about the condition.
Website: https://endometriosisassn.org/
Endometriosis Foundation of America (EndoFound)
Works to increase awareness of endometriosis, advance research, and improve education and advocacy for people living with the condition.
Website: https://www.endofound.org/
The Endometriosis Coalition
A patient-founded organization focused on endometriosis education, awareness, advocacy, and connecting people affected by the condition with information and support.
Website: https://www.theendo.co/
Blindness & Low Vision
American Foundation for the Blind (AFB)
Works to expand opportunities and improve accessibility for people who are blind or have low vision. Provides educational resources on assistive technology, accessibility, disability rights, and navigating everyday life with vision loss.
Website: https://www.afb.org/
National Federation of the Blind (NFB)
A nationwide organization led by blind people that advocates for equal rights, independence, and full participation in society. Offers information, advocacy resources, and opportunities for connection with the blind community.
Website: https://nfb.org/
American Council of the Blind (ACB)
Advocates for people who are blind or have low vision, with a focus on equal access, independence, accessibility, and community participation. Offers educational resources, advocacy initiatives, and opportunities to connect with others.
Website: https://www.acb.org/
Deaf, Hard of Hearing & DeafBlind Resources
National Association of the Deaf (NAD)
Advocates for the civil, human, and linguistic rights of Deaf and hard-of-hearing people. Provides resources on accessibility, discrimination, American Sign Language (ASL), education, and communication access.
Website: https://www.nad.org/
Hearing Loss Association of America (HLAA)
Provides education, advocacy, and peer support for people with hearing loss. Offers resources on communication access, assistive technology, hearing-related accommodations, and finding local support groups.
Website: https://www.hearingloss.org/
Helen Keller National Center for DeafBlind Youths and Adults (HKNC)
Provides services, training, and resources for people who are DeafBlind, with a focus on communication, independent living, orientation and mobility, and vocational skills.
Website: https://www.helenkeller.org/hknc/